What a beautiful morning it is again today, Spring certainly feels as though it is here, apart from at the chilly nights. Last night for me was a better night, pains were still there but with my new pain relief regime it was kept at bay, and I slept most of the night even with taking tablets at midnight, I still woke again at my usual 3am! Unlike normal though, I was able to doze on and off until about 6am. I feel a little better this morning for that, I do however, have a little tenderness directly below my ribs in the centre, not sure if maybe this is my Jpouch or my liver.
It’s nice to feel well enough today to try to finish off work that I still have, once this is done I will have to rethink and see where we go. It is work that I started prior to my diagnosis and starting chemo so it is something that I need to finish as soon as possible, up until now I haven’t really felt up to it so I will try today and see what happens.
I think I will have to give up work as it is so hit and miss as to how I will feel, once I have seen the MacMillan benefits support person I will know what I can get and whether I can live on it!! 😀 I mentioned yesterday that I was falling asleep standing up, I have now found out that about 3 or 4 days after chemo I will probably feel like this, now I know, I can adjust things to suit. It is all to do with learning how chemo will affect me, when it might and how I deal with it, I will not be beaten by this cancer. Everyone around me is being so good and helpful, from consultants down. I had a letter from Dr Webster the morning outlining the telephone consultation we had last week, it was so nice to hear him so enthusiastic in wanting to make sure that my liver behaved itself and the bile ducts remained unblocked, so that I stood the best chance of fighting my cholangiocarcinoma.
Thankfully, today I have been able to finish off some the things I needed to do, although I am feeling a bit weary now I am a lot better than yesterday, I will start to get in to a routine soon and I will know what to expect. I know chemo affects everyone differently, so I can only deal with it the best way that I can. No chemo this week so a chance to have an extra weeks rest and recovery before back again next Wednesday for clinic and then chemo on Thursday morning.