Thursday 30th June 2016

Its nice to see a bit of sunshine today, the rain yesterday was very un summer like. I am feeling better day by day now thankfully, once I understood what all the pains were about it was easier to sort them so that I could get some decent sleep. The sweats are getting less and less and I am getting some energy back at last.

Hopefully I will be able to get out and have a walk this weekend and not feel too exhausted, and with any luck it will be sunny. You don’t really realise the effect that something like this has on your body, although there were 4 tumours in the liver, apparently, they were basically two large areas one in each lobe, at about the maximum size for ablation. The consutant radiologist said to be theurgical equivalent would be to have about half of my liver removed!!! 😱

Anyway, I seem to be on the mend now, the antibiotics finish tomorrow so I hope that they have done their job. Sam and Laura are taking me away at the end of July, we are not sure if it will be abroad or in the UK, it will depend very much on how I feel, after that I will give myself a coupon weeks of rest and then maybe I will get to go away somewhere else. I hope my energy holds so that I can do what I would like to do, and of course I hope that the cancer doesn’t grow somewhere inaccessible!!!!

I am looking forward to making the most of my time, living day by day, making the most of every opportunity that comes along. The last 4 weeks have been a little frustrating, being so tired, feeling so weak, but I hope that is just about behind me now.

Tuesday 28th June 2016

Good morning everyone, once again apologies for not posting regularly, but I have had another spell in hospital after the ablation. I have had an infection and been on IV antibiotics twice in the last 2 weeks, hopefully now I am on top of it and getting better.

I had a message about comments not appearing, I moderate all comments as I now get a lot of spam, something I am dealing with, so if the isn’t a name of the author or the name is “rubbish” it automatically gets deleted, otherwise I do get to read everything eventually, however, over the last few weeks I have been unable to do much at all as I have ben so exhausted.

imageI came out of hospital last Friday feeling great and my daughters took me for a relaxing weekend in Cornwall, it seems though that yet again I tried to do too much too soon as by Saturday lunchtime I was totally wiped out and slept all afternoon, I have been relaxing since then and I am now starting to feel on the up, well just a little!!

I have to make sure that I have plenty of bed rest otherwise it will take forever to recover from this, yesterday I didn’t mange to get out of bed until about 5pm, and then spent a couple of hours watching TV before going back to bed. the pain now seems to be pretty well under control thankfully, and the pain killers are starting to reduce.

My recent CT scan shows that the ablation has worked and they have removed the tumours in the liver, I have a clinic appointment with my oncologist Dr Shui next week so hopefully there will be good news there, but all I can do is wait and see where the next tumour will appear and then see if they can deal with that, I can only remain positive about it all, something that is not easy at the moment as this is all playing havoc with my emotions, I have never been someone to sit around doing nothing, but now I have no choice and it is very frustrating!!!!

Saturday 18th June 2016

Hi all, I’m sorry I haven’t been posting on a regular basis but these last two weeks or so have been difficult for me. After the ablation I never really recovered properly before I had a big infection, both of these have knocked me sideways, on top of that it has been difficult to get my pain killers correct. The ablation hopefully has reduced the need for as many pain killers, but it is getting the amount correct that is difficult. I go to bed and I sleep through to about 7am when I need to take tablets, I the go back to sleep sometimes finding it difficult to open my eyes by midday, when I do wake up I just feel on another planet, I feel weak, I have “aches” from gastritis and I generally feel YUK!!!!!!

I went to see my palliative care doctor in the local hospice on Friday, yesterday, which helped a lot. I was put on amitriptyline about a week ago but all that seems to have done is to make me sleep and feel “down” just making me feel as though I don’t care, she has taken me off of those thankfully, I have also been on a high dose of fentanyl, this has been reduced a little to see how it goes. 24 hours on and I feel a little better, however, this afternoon I went in to town with my daughter, I struggled, for the first time I felt as though I needed a wheel chair, I’M NOT READY FOR THAT YET!!!!!!!!

I took it easily and rested as much as I needed to, I had been out about a couple of hours, once back at my daughters I lay down and after about half an hour I felt quite a bit better, it is strange how that happens, I feel up for a short walk this evening but I’m not sure if I should. I am a stubborn so and so and I don’t want to give in, but I think I will have to for a while, I still want to go to a few places and do a few more things before my time is up. I know now that there is nothing more that can be done, they can only treat what comes up next, I hope it will be a while before something does but I know it will at some point.

I want to make the most of every bit of time that I have left, but I am finding it more and more difficult, tiredness just knocks me out as a lot of us know, I will fight every bit of the way and I will enjoy life the best I can with the people I most want to spend the time with, I will keep the blog up together as often as I can an I hope it may help others in a similar situation.

Wednesday 15th June 2016

Hi Everyone, I’m back!!!!!

I have had a different two weeks since my microwave ablation treatment, it hit me quite hard after the procedure, pain, hot flushes, flu like symptoms, as well as a foul taste in my mouth. Everything just tasted very sweet, so anything that was sweet was extra sweet!!! It ended up that all I could really get down was no added sugar lime juice, bottled water and toast and butter!!

Inevitably I lost weight but I was starting to feel better, Teresa and I went up to London last Friday afternoon so that we didn’t have far to travel to see the trooping of the colour on Saturday. I didn’t sleep too well on the Friday night and we needed to be on Horseguards Parade and seated by 10am on the Saturday. I managed a couple of croissants for breakfast and we got a taxi about 9am. It is only about 12 minutes by Taxi but it was trying to find the right drop off point with the least walking that was difficult. In the end we had quite a walk to our seats but never mind we got there, it was a warm 22c but it was so muggy, I was just drenched in sweat by the time I sat down, I can easily see why the Guardsmen fainted in their heavy uniforms!!!!!

I thoroughly enjoyed the day and was so glad that I had made the effort to go but was really exhausted by the time we arrived back at the car, we had an easy drive home and I slept on and off during the trip. Once home I think I just flaked out, I can’t really remember much about it, on the Sunday I lay in until about midday ish but managed to get up and have something to eat and drink, I needed to after the Saturday. I went off to bed late afternoon and I progressively felt worse and worse, feeling hot, shivers, pains and was really in agony, but I had been told that I would get flu like symptoms and of course I would get pain. At about 8pm Teresa called 999 for an ambulance as by now my temp had reached 38.9c, they eventually reached just after 2am Monday morning, I really felt as though I had been through the mill. They were brilliant when I reached Dorset County Hospital, I went straight into a side room in A&E as I was deemed to be immuno compromised, and shortly afterwards I was being given IV antibiotics, my temp had reduced a bit by now thankfully.

I eventually had a bed allocated about 6am, again a single room which was great for me, all I wanted was peace and quiet, the night staff were brilliant and very caring, all bloods were done either in A&E or on the ward. IV antibiotics were continued, my CRP was 227 on admission but cholangitis had been ruled out, so it was probably down to the ablation. I have been discharged today after a couple of days of observation and IV antibiotics, I still feel very weak but I have my taste back and that is sooooo lovely!!! Hopefully I will improve day by day now as the ablation effects recede, I do hope so anyway.

Monday 6th June 2016

Hi everyone I’m sorry I haven’t posted for the last few days, I had my microwave ablation last Thursday afternoon, under general anaesthetic and havn’t felt up to it, all went very well after the tribulations of the previous week.

I arrived a bit early for my appointment at 11.26 so I expected a short wait, there was none of that, by 11.35 I was being checked in and by about midday I was in the theatre waiting to have the procedure. As usual once the cannula was in I didn’t really know much else, I think I was in the procedure room for about 3 – 3.5 hours but wasn’t really sure, the good news was that when I woke up I found that I had three plasters around my liver. When Dr Bandula, my consultant came in that’s when I found out that he had done all the tumours, so I don’t have to go back to have another session, that sounded good!!!

I stayed in overnight, which wasn’t too bad, I actually slept quite a bit, and in the morning I had a CT scan followed by a chat with Dr Bandula. He told me that the scan was good and they thought that they had removed all the tumours, we chatted about any pain I had and said that he was happy for me to go home then, this was about 9.30, I still wasn’t too happy about the pain so I elected to stay and he came back to see me at lunchtime, at which time I was discharged about 1.30

The trip home was just a blur as the anaesthetic was still working and I think I slept most of the way back. Friday night was quite painful a combination of the bruising, to be expected, wind and the sites where the needles went it. I managed to get up on Saturday afternoon for a couple of hours and again on Sunday afternoon for a couple of hours, today I’m up and dressed and enjoying the sunshine!!

It does take time to get over the trauma that these procedures cause, I’m sure tomorrow I will be doing even more and the day after more still. I was told to take it easy for a couple of days, no strenuous work and I would probably have flu like symptoms for about 2 weeks, I have already started getting those. This is because the body is mopping up all the dead cells from the ablation, I woke up this morning just running with sweat, so the body seems to be doing it’s part 😀 Lets see what the next few days bring