Friday 23rd September 2016

Sunshine again today, September is turning out to be a lovely month, not as warm, overall, as August but still nice. Laura and Sam are going to me this weekend which will be nice, I think they are worrying a bit about how I am managing, but I’m  doing well, Sam also wants to make sure she does my tablets!!!! My oxycodone is now down from 200mg twice a day to 100mg twice a day, this will come down again to 80mg twice a day next Monday. I’m so glad that the pain killers are coming down especially the morphine as this is the major cause of the constipation that I am getting, and the pain associated with it.

I saw my GP on Wednesday as I have been a temporary patient while staying with Sam. She is very good, we went through what had happened, and the drugs that I am now on, making sure that they are all on the system so I can get them when needed. Boots in Sherborne are really amazing, I needed a prescription after my appointment and Sam went in for me, they asked how I was and then bumped me to the front of the queue, they have already said that they will deliver to me any day of the week, there are some advantages about living in a small town!!! 😀

Yet another nice day today, I have been reducing my pain killers but I may have reached the limit for the moment, we will wait and see, it could be the constipation or it could be my liver, or maybe something else!!!! 😀 I will stay on this level for a few days and see what happens, it may just be a hiccup.

I just have to take each day as they come, it could be I have done too much, who knows, what I do know is I won’t let it get to me, think positive about everything. I have both Sam and Laura coming down to me this weekend so it should be good. They will get in some shopping for me for the next week, I hope the weather stays good, its not so warm but it is nice to see the sunshine.

Next post will appear soon 😀😀😀

Tuesday 13th September 2016

Hi again all, London may be getting temperatures of 31 today with lovely sunshine but here in Dorset it is warm but we are having a thunderstorm with torrential rain 😀 I suppose we can’t all have the same sunny weather!!

Yesterday was warm but great to dry washing, it is September I suppose, it should be much cooler than this. I have a relaxing day yesterday, once the washing was done and hung out, I spent the day reading or watching TV, I didn’t have the energy to do anything else!! That is my problem at the moment, energy!!!! I don’t have very much, I can walk so far and be OK, but if I walk any further I am shattered for the next couple of days, the girls are thinking about getting me an electric scooter for when I want to walk off road and it is difficult for them to push the ordinary wheel chair. I do want to make the most of every day, and even if I can’t walk then I can get in to the countryside on a scooter, thats not easy for me as I have always been so independent and have enjoyed going for walks.

A short while ago I would never have entertained getting an electric scooter, but now it seems like it will be the only way to enjoy things. Sam is back at work now, but the three of us are looking at trying to get away for a long weekend or even a few days at half term.

I have the physio coming today to help with my shoulder, it is nearly back to normal but there are certain positions that are still very difficult. This thunderstorm is still rumbling on, its been about half an hour now, but at least the rain appears to have stopped!!

I am still managing to reduce my opiates and not take any back up pain relief, I am pleased about that, the opiates do cause constipation, but that is difficult to control, to makes life uncomfortable. I’m sure there are people reading this blog that can emphasise with that, it is one of the side effects of opiate pain killers. Hopefully I will soon be driving again, get the pain killers reduced, my tiredness reduces and I will be able to drive, I do miss that independence of jumping in to the car to go where I want to, just to go and see friends or do some shopping, but never mind I will soon be there!!! Keeping weight on is another problem I am having, I have a good appetite but instead of putting weight on I am still losing it, apparently that is the cancer that is taking the goodness, or so I am told, BUT I will beat it and eat so much that the cancer will have had enough and I get to put on weight!!!! 😀

The physio was pleased with the progress with my shoulder so all go there, we chatted about energy or lack of it and she has suggested that I walk for 5 mins twice a day 3 days a week, I need to walk to get my energy back but that could take a year or more. I mentioned about an electric scooter and she thought it was a great idea, make the most of the energy that I have got, so being able to “drive” to the shops and then shop would be much better, all in all a good day.

Look aout for the next post, I feel better now, so hopefully I can put something up every couple of days 😀😀

Sunday 4th September 2016

Hi all, the weather down her is not so nice today, it as been raining and it is a bit cooler. I thought everything was going in the right direction until I received a phone call late yesterday afternoon saying that my CRP was raised again!!!!!! So, instead of being discharged from “hospital at home” yesterday as was hoped for, they were back in this morning taking OBS and are back again tomorrow to take a blood test 😱. If the CRP is raised again, they have to decide if it is my liver or my shoulder infection, it just doesn’t seem to stop, one day maybe!!!! My shoulder has been more painful since seeing the doctor last Thursday and manipulating it, maybe it has disturbed something, if it has it is no bad thing as I just want to get this sorted for good.

I had the blood results back today and the CRP has gone down again!!!!!!!!!

Friday 2nd September 2016

Hi all, well here we are the start of yet another month in the rest of my life!! I have had a nice time over the last few days, making the most of the last of the August sunshine, for me that is important, I just want to enjoy every day as it comes, this is something that a lot of people don’t do, me included until I was diagnosed with cancer.

imageI hope we have an Indian summer so we can all enjoy more warm weather, although the weather isn’t everything, there are so many other things to enjoy out there, things I have mentioned before in my blog. We are entering Autumn which is a really beautiful time in the UK, watching the leaves change colour, that colour change really is fantastic and it seems to happen so quickly!!!! I know I have missed this time of year, it passes very quickly and before you know it the leaves are gone, being so busy as I have been, I just missed these changes most years. This year I will make the most of it, making sure I go and watch these fabulous changes, around the coastline things change as there well, living in Sherborne, I am lucky enough to be able to enjoy the countryside changes as well as the coastline. Hopefully, I will get some photos so look out for them on the blog, my camera has seen a lot of use since I bought it earlier this year 😀 , I will post some of these soon, covering all sorts of things, the Red Arrows in Weymouth, The Great Dorset Steam Fair and general countryside scenes as they change. The picture on the left is Portland covered in cloud seen from Durdle Door

Yesterday I went to to see my Orthopaedic consultant to see how my shoulder is improving, to me it feels pretty good, it always seems that I am going for hospital appointments these days, but things are improving I think, when I saw Dr Shiu, my oncologist a couple of weeks ago, he implied that he didn’t expect me to still be going now, when the chemo didn’t work I think he thought that maybe another few months …………..!!!!!! I am a stubborn bugger as everyone keeps telling me, I stay positive, I make the most of life and I’m still here, long may it go on!!!!!! I intent to beat the odds and still be here to see Laura complete her Phd, if I can!! My shoulder seems to be fine, and I have another appointment in 6 weeks time with the consultant, mind you he did pull my arm about a bit and it feels worse today tan it did yesterday. 😀 I am getting some gentle physiotherapy soon from a physio at the hospice, so I hope that helps more

Look out for another post over the weekend and hopefully some more photos, I hope everyone has a great weekend!!😎

Monday 29th August 2016

Hi again all, what a fabulous day its today, sunshine, no wind, warm. Well we did go to the Great Dorset Steam fair yesterday, but the weather wasn’t quite so good to start with, heavy drizzle and overcast, however, that cleared quite quickly and we had a lovely, but long day day.

It was the first time that we had been for quite a while, and it was certainly smaller than it used to be, or it felt it. The steamers were still there in large numbers but things like the market area had reduced in size and quality!! 😀 As I have a lack of energy these days, everyone from the doctors to Sam and Laura tell me that I need to use my energy where I need it, so the girls hired me a 4 wheel drive buggy for the day, WOW that was fun!!!!! It is only when you are in a wheel chair that you realise how rude people are to the disabled, you somehow become ……….. invisible 😀😀.  A lot of people just stand in the way, or say “sorry, I didn’t see you”, many not even saying sorry!!!!! Anyway, my challenge for the day was to see how many of these rude people I could interact with 😀, I tried to be polite, saying “excuse me” but somehow they became deaf, others needed a little push!!!!!

Anyway, we had a really good day despite that, driving the buggy really was fun and it made life so much easier to get around for all of us. the day passed really quickly, it was nice to see all the showman engines, the working traction engines and all the old vehicles, far too much to see in a day. We had to have the buggy back for 5pm, and that time came around all too quickly, we took it back and then we pondered on what to do to finish the day. There were fireworks in Weymouth bay in the evening, which was an option and the showman engines all get lit up in the evening, a sight not to be missed. Sooooooo we decided to have an extra long day, silly but it would be worth it.

We decided to go home and have a little break or snooze, go down to see the fireworks which were at 9.30, once these were over we would go back to the Dorset Steam Fair to see everything lit up. We got to Weymouth bay at about 9,28pm, great timing watch a lovely firework display, a friend of mine, Roly, was doing them, it made a change to actually see them as in the past I was normally setting them off. At about 9.45pm we set off for the steam fair, we arrived there at about 10.30 ish, from a distance the fair looked fabulous and I was looking forward to seeing things close up close. We only had the push wheel chair and as everything was uphill, I decided to walk to the show ground. It was a bit exhausting, but I need to be able to walk as well, I need to  do this, bits of both, otherwise if you don’t use it you lose it as they say!!!!! 😀

imageThe scene was amazing when everything was lit up, the showman’s engines all lit up and working away, people chatting to the owners, taking photos and more than likely having a “pint” in hand. The atmosphere was just fabulous, something not to be missed, I’m so glad that we went back to see it. We had to join in and Laura had a half of cider and I shared a half of hot mulled cider with Sam, it was lovely. At midnight there was going to be a mass blowing of whistles from the engines, sadly, I was far too tired to stay on and we made out way back to the car park just after 11pm, Sam and Laura did try to push me back in the wheel chair but after about the 10th time of me almost being thrown out 😀, I decided that it was safer to walk back to the car!!!!

All in all in was a fantastic day, something I hope I will get to do again, only time will tell that!!!