Hi again everyone, sorry I have been quiet on the blog but there has been quite a lot happening; not all bad!!! I have tried to make the most of everyday, and it has been fun, but some things have been difficult. About 2 or 4 weeks ago I started get pains in my right shoulder, I have had these on and off for a couple of years or more after a car accident, I was told that I had impinged shoulders and nothing could be done about them, but a few weeks a go they started getting worse than normal.
I decided that perhaps a physiotherapist may be able to help, the hospice offers these types of treatment, so I went to see someone at the hospice. She checked out my shoulder, which by now was very painful, and she said that I probably had tendonitis and I needed to rest it for a few months, not easy as I am right handed, but I accepted that.
On Thursday 11th August Sam took me down to Paignton in Devon, A couple of friends of mine from Firework days were doing a show there so it was nice to go and see them, it was a great day out, sunshine all the way. We stayed for a couple of hours and then made the trip home, it was a nice to see the guys and it was nice to get out in the sunshine.
The following week 16th August I had to go to UCLH and have a scan and to see my oncologist Dr Shiu. UCLH had arranged a hotel for us to stay on on the Monday night as the scan was early on the Tuesday. My energy levels are pretty low at the moment so I was in a wheel chair. When we arrived at the hospital the first problem was wheel chair access, not very good!!! To get back down to the main reception was quite a challenge, using the staff lifts and corridors, at one point there was a steep slope to get down, nooooooo not on a wheelchair, we tried but it got carried away with me on board 😀😀, thankfully we only had one night there!!
The scan was done on the morning so that the results would be ready for my appointment with Dr Shiu in the afternoon. They were and we managed to discuss the results of it. The radiologist said that there were a lot of new “spots” in the liver, he thought they were lesions, Dr Shiu wasn’t sure, he thought that they could be spots of infection, so it was left a bit in limbo. It was decided that I would have another scan on the 18th October to see what had changed, I would have finished on the antibiotics then so hopefully we would be able to see whether it was infection or lesions. Thankfully, there were no growths showing anywhere else, so that was good news!!
After my trip to UCLH on the Tuesday, my shoulder started to become very painful on the Thursday afternoon and by Thursday evening I needed to go and see the duty Doctor at my GP. He checked it out and said I needed an X-ray the following day. Friday morning came and I was in so much pain that we called the GP out, after examinations he arranged for me to see the orthopaedics in A&E as soon as possible. Sam took me straight in and I had a blood test and an X-ray. These came back in about an hour and He then needed to take some fluid from the joint as he thought it was infected.
He took two syringes full of pus from the joint, and he said that it needed washing out. I was admitted and my shoulder joint was washed out at around 11pm on Friday night, they took another half cup of pus from the joint, a pretty bad infection eh!!!!! I had hoped that the following morning my shoulder would feel great, got that wrong as well!! It was painful but not as much as it had been. I was kept in over the weekend on IV antibiotics, they weren’t sure what to give as they were waiting for cultures to grow to see what antibiotics were needed. As I needed IV antibiotics I had to stay in hospital, another week just sitting there!!!!!! On the Monday I had a reprieve, they have a system called “hospital at home” it means that I can stay an inpatient but be at home!!!! I jumped at that, I am now at home and a nurse comes in twice a day to take my observations and to give IV antibiotics until these were finished, A great system.
I am staying at Sam’s, the nurses visit every day and this finishes on Sunday 28th August. I will be glad to get the canula out and get the use of my right arm back!! Sam and Laura are taking me to the Great Dorset Steam fair tomorrow, we used to go many years ago, so this is a great opportunity, they have booked a 4 wheeled drive buggy for me, I know that trying to walk around the fair would be impossible, so it’s a great option, I don’t like the idea of using a wheel chair, but it does help to use my energy in the best way possible. Next time I will keep you up to date on the trip!!!! 😀😀